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Econ-Omics Talks: Bringing the Patient Voice and Values into Precision Health Economics to Inform Patient-Centered Care and Decision Making
November 30 @ 6:00 pm - 7:00 pm EST
This presentation will identify the benefits of incorporating patient values and preferences into precision health economics research to reflect what matters to patients and families. Although there is growing interest in patient preferences information the results of patient preference studies are not routinely incorporated into decision making processes as part of health economics in precision health. One of the challenges is generating rigorous and appropriate evidence in a timely manner. Several case examples will be used to illustrate various methods for preference measurement depending on the purpose and decision making context to increase the relevance and usefulness of preferences in precision health economics.
This presentation is part of the Econ-Omics Talks series and will include a brief speaker interview in addition to a research seminar.
Featured Speaker: Deborah Marshall
Deborah is a Professor of Health Economics, Cumming School of Medicine, University of Calgary and Scientific Director, Research and Partnership Evaluation and Impact, Alberta Children’s Hospital Research Institute (ACHRI) and Lead of Impact, Value and Knowledge Mobilisation for the One Child Every Child (OCEC) Canada First Research Excellence Fund programme.
She is a health economist and health services researcher leading the health economics, socioeconomic benefits, patient preferences and patient engagement activities for several national and international research programmes precision health and patient-oriented research to measure value and associated outcomes and economic impact: 1) UCAN CAN-DU (Understanding Childhood Arthritis Network Canada-Netherlands) and 2) UCAN CURE (Precision Decisions for Childhood Arthritis) personalized medicine networks in childhood arthritis; 3) SOLVE Care4Rare Canada – harnessing multi-omics to deliver innovative diagnostic care for rare genetic diseases; and 4) PAVE (Producing an Arthritis Value-framework with economic Evidence-paving the way for rare childhood diseases funded by the European Joint Programme Rare Diseases (EJPRD) with Calgary, Canada as the coordinating center for German, Belgian, Swiss, Israeli and Spanish partners.
Deborah is a founding co-investigator of the innovative Patient and Community Engagement Research (PaCER) programme at the University of Calgary which trains patients to design and conduct health research, using specific adapted methods of qualitative inquiry. She is also a Founding Member of the Global Economics and Evaluation of Clinical Genomics Sequencing Working Group (GEECS) and the International Academy of Health Preferences Research (IAHPR). She is an active member of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) as a member of the Patient Preferences Special Interest Group, and co-author of multiple ISPOR Task Force Reports on Good Research Practices for Preferences research.